Many carers are struggling to access supports in their own right and say they are worse off under the National Disability Insurance Scheme, Carers Australia has told a Productivity Commission review.

The peak body said assistance for carers should be a central concern in addressing the sustainability of the $22 billion scheme as unpaid carers continued to provide the most care to NDIS participants and the formal disability workforce faced ongoing shortages.

There should be greater recognition of the contribution of carers to the NDIS and the government should implement an integrated carer support services system, Carers Australia told the PC study into the NDIS costs.

The Department of Social Services is currently developing a proposed model for government consideration. If implemented, the services would target unpaid carers supporting people both over and under 65.

Carers not seeing benefits from NDIS

A recent survey of family and friend carers conducted by Carers ACT found 82 per cent of carers reported the NDIS did not increase a carer’s time out from their caring role and inclusion of services to provide carers with a break was variable in NDIS plans.

The majority (63 per cent) of survey respondents also said the time spent managing the support needs of the person they cared for had increased.

Similarly, an independent evaluation of the NDIS conducted by Flinders University found that many family members and carers of NDIS participants were unable to take adequate breaks from providing support and that they could not access carer support consistently.

Carers Australia said many carers and NDIS participants were struggling to navigate the disability services system and there was a need for more support coordination to help operationalise NDIS plans.

The allocation of support coordination is consistently being denied to anyone who does not fit the NDIA’s “limited definition” of complex, Carers Australia said.

The PC review is ongoing and is scheduled to release a final report in September.

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1 Comment

  1. Hello, I’m a near 63 year old mother and carer of a paraplegic son and widow 20 months ago.
    I have only once had my son in respite in his 37years.
    Many things are wrong with my son’s health which requires at times 24 hour care from me.
    I am disabled also relying on a stick to aid my walking.

    Having read many pages trying to put my head around this NDIS. Sadly it is missing the mark for disabled and carers. Without the care I have given my son, he would have died many years ago.
    Where is the help now for the carer to continue supporting our love ones? I’m desperately looking for answers.
    All the NDIS is interested in is naturally my son’s goals which I have tried in many ways to support never mind his health and body is excluding him to even enjoy them.
    I feel emotionally drained with the planning of NDIS it’s not realistic. ISP is the better format.
    Too much pressure this change

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